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Ride Ataxia Orlando - Nov 2

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14 Jul 2014 04:55 #110 by Forum Admin
Ride Ataxia Orlando - Nov 2 was created by Forum Admin
I'm helping to coordinate Ride Ataxia Orlando, a charity cycling event presented by Outback Steakhouse that supports research to treat and cure Friedreich's ataxia (FA).

Most people with FA, a degenerative neuromuscular disease with no treatment or cure, can't walk around the block unassisted, but they can ride for miles and miles under their own power on recumbent trikes. You can bring that opportunity and the hope for a cure to many more by helping us spread the word about Ride Orlando with a posting on your website.
Event: Ride Ataxia Orlando
Date: Sunday, November 2, 2014
Location: Waterfront Park - Clermont, FL
Website: rideataxia.org/orlando
Event Description: 4, 16, 25, and 50 mile route options. Fully stocked rest stops, strong SAG support, and delicious post ride food by Outback Steakhouse and Carrabba's Italian Grill. Fundraising benefits the Friedreich’s Ataxia Research Alliance (FARA). Fundraising not required but strongly encouraged.

Registration Fee: $45 Regular Priced Cyclist (No Fundraising Minimum) or $25 Reduced Price Cyclist (With $200 Fundraising Minimum); +$5 after 10/2/14 and +$10 for same day registration. Includes ride, lunch, and event t-shirt.

Friedreich's ataxia (FA) is a debilitating multi-system disease and the most common type of inherited ataxia. 1 in 100 people are carriers of the FA gene. What begins as difficulty with balance and coordination progresses over a short period of time to a life altering loss of mobility, energy, speech and hearing, robbing children and young adults of the ability to lead active lives. FA also presents serious risk of diabetes and life shortening cardiac disease. As of today, there is no treatment or cure. Fundraising to support FA research is strongly encouraged, but not required.

I sincerely appreciate your support and look forward to hearing from you soon. Please contact me directly if you have any general questions.

Thank you,
Emma Crowley
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